ALS residential living...

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A startling fact about ALS is that well over 90% of the people afflicted with this disease opt to die rather than use a ventilator to breathe for them when the diaphragm becomes to weak to pump the lungs. A significant reason for this is that the perception of life on a vent is pretty dismal. Across the country, the only places to provide care to a vented person are hospitals (or worse) - not an inviting living environment. A prominent nursing home provider in the Boston area is teamed up with the ALS Association in MA to create a new concept in residential care. This is HUGE! In the near future, a person with ALS (pALS), will have a real reason to look forward to a long life.

Channel: News & Politics
Uploaded: October 15, 2007 at 7:28 pm
Author: smoothsaling

Length: 0:09:42
Rating: 4.70
Views: 7,607

Tags: ALS amyotrophic gehrig nursing group home ventilator vent tracheotomy

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Video Comments:
maypema (Saturday 26th of January 2008 09:22:18 PM)
I would love to see the final design which will allow people with ALS to live more fully and freely. I care for people with ALS in Colorado. I am interested in learning how it feels for people with ALS to be in such a home. Will there be room for the family or just the person with ALS? Maya RN
mnccarna (Sunday 18th of November 2007 02:58:04 PM)
Thanks for posting this! I'll be watching for further developments in the ALS house. I wish you well in your journey with ALS. Montana Carol
mftravis2 (Tuesday 16th of October 2007 10:02:06 AM)
Kudos to posting this to YouTube Steve! --Mike
ManicGrasshopper (Monday 15th of October 2007 09:29:01 PM)
What a worthy cause. I am in awe over the togetherness of this venture. Kudos to all involved, and God Bless.